Care partners are key to the transplant process. Without an identified care partner during the pre-transplant evaluation, a transplant can’t move forward.
At UPMC, we provide resources and information to ensure you and your loved one can navigate the transplant process successfully. Here’s what to expect if you’re thinking about taking on the role of care partner.
Your Role as a Care Partner Pre-Transplant
Transplant surgery requires a lot of preparation. This is true for both the person having the transplant and their care partner.
As a care partner, you’ll need to:
- Meet with the transplant team to fully learn about the transplant process.
- Review the Health Maintenance Checklist. This outlines the tests, records, and vaccines your loved one needs before the transplant.
- Take part in the pre-transplant education class.
Your loved one should complete the Health Maintenance Checklist steps early. This is in case they become too sick to tackle them later.
You may need to help them schedule testing and make appointments. You may also need to provide emotional support.
Leading up to the transplant, you’ll have to keep an eye on their physical function — changes in their clinical status could impact their eligibility. If you notice changes in your loved one’s health that concern you, contact the pre-transplant coordinators right away.
What Care Partners Do After a Transplant
Post-transplant, care partners need to help with simple daily activities like walking, bathing, dressing, and eating. Before discharge, we’ll train you on how to administer any required medications.
You’ll also have to:
- Ensure your loved one attends all follow-up appointments and transplant-related testing. Doing so helps set them up for success. Not following up with post-transplant care can lead to poor long-term outcomes.
- Let your loved one’s care team know if they have issues going to appointments or tests. Also let them know about any severe health changes.
Providing Support Is the First Step to Recovery
The post-transplant journey includes challenges. Recovery can feel slow and arduous.
Getting support from a care partner is vital to a transplant recipient’s emotional well-being. Besides assisting your loved one with their physical needs, you’ll need to provide emotional support as they recover.
Being a good care partner means caring for yourself, too. Make sure you have your own support system and take time to recharge so you’re there for your loved one.
If you have any questions or would like to learn more, visit UPMC.com/Transplant or call 855-995-2664.